Best of luck newmrsT. I hope all will be ok. I am hoping to TTC after our wedding in August and I will be at risk of having a baby with spina bifida and probably so hydrocephalus as well. I have epilepsy and the drugs can cause spina bifida. I have been trying to get off them for over a year now, but it is a slow process. I have managed to half the dose and hopefully will be able to lower it again before the wedding, but I won't be fully off it. Taking the larger dose of folic acid, so will be praying that all will be ok. Have to measure the risk factor between being well and a baby might be ill, or having seizures in pregnancy that could kill the poor baby and hurt me. It's a hard one.
Just wondering naughty, has your son got spina bifida as well? Best of luck with him too and your family.